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Anecdotal evidence points to relief for MS sufferers : Comments
By Cris Kerr, published 3/1/2006Cris Kerr argues low-dose Naltrexone is a viable treatment option for multiple sclerosis sufferers.
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Posted by Bronwyn, Thursday, 5 January 2006 2:11:36 AM
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Of course I agree with all of you about the importance of dietary and lifestyle changes.
I just think that starting this topic trashing firstly the Low Dose of Naltrexone was unfair. Also, the insinuation about the probability of causing Liver damage was orrible and needed to be rectified. I cannot tell you how and who can have benefit from this drug but I can tell you that it is very hard to find weakness of such therapy. The driving force behind Research, Development, and Clinical Trials is commercial. There’s no big profit to be made from a clinical trial of a ‘generic’ or ‘orphan’ drug such as Naltrexone regardless of the promise it holds, so nothing happens: http://www.thecompounder.com/cantgetldn.html Having said that, I am not really upset with anybody and I wish you all the best. Ciao Posted by MMax, Thursday, 5 January 2006 3:32:47 AM
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Hi all,
Thank you all for your comments. They're all relevant ... especially "J" who is an outstanding woman and was the first to submit an LDN success story to Case Health years ago. (Sounds a lot like you "J" - hope I'm not wrong about that.) Everyone is different - we all have our own perspective and preference - but we also have one thing in common - that is the desire to give patients sufficient information for them to make informed decisions - and if you don't have access to ALL the relevant information you can't make an informed decision. To those respondents who've achieved success or know of someone who has achieved success: You're invited to submit your success story to Case Health because the weight of anecdotal evidence will add credibility to the successful method employed - whether it be diet, exercise, supplementation, or drug - doesn't matter - as long as it achieved success from your (the patient's) perspective. That is what the 'Case Health - Health Success Stories' website is all about - the collection of anecdotal evidence of success to give weight to promising methods regardless of the method type. When sufficient evidence builds, as is the case with LDN, it warrants official investigation - hence my article and my advocacy for an offical body that can act on patient testimony of success. Regards, Cris Kerr PS The risk to the liver mentioned in one of the posts refers to a Naltrexone study based on extremely high doses (from memory, over 10 times the 4.5mg used to successfully treat autoimmune disorders such as MS). Posted by Cris Kerr, Thursday, 5 January 2006 9:34:40 AM
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Mmax, MS is the result of damage to myelin - a protective sheath surrounding nerve fibres of the central nervous system. When myelin is damaged, this interferes with messages between the brain and other parts of the body. This is a manageable and reversible complaint properly approached.
Naltrexone is s synthetic drug which when taken in large does destroys the liver. As with all synthetic drugs, there are side effects which irrelevant to individual dosage has an accumulating affect over time. Thats why when medico's say that the transplant or drug treatment is successful, they are only talking 2-5 years. After that drugs begin to destroy the immune system. If this were not so, then we would all be cured by just popping a pill. More than 15000 people were hospitalised from pharmaceutically adverse reactions last year. Thousands die in hospitals from wrong diagnosis, and wrong treatment each year. Medicine has a history of mis diagnosis, wrong treatment and drug poisonings. I am a part of a support group that helps those that have been classed as incurable, without hope and badly harmed by medical practise. I got into this because of my own fight against the death sentence handed down by the medical profession regarding my condition. They gave me just 18 months at the most, 33 years ago. My doctor calls me the walking dead and I tell him what to look for, he constantly prescribes drugs, knowing I won't take them. Then he asks me what I did that fixed the problem. My problem won't go away, but I am healthier than I was back then and even though they tell me I shouldn't be here, now they say I will live a to a very old age, I'm over 60. What keeps me going is my diet and lots of excercise, most my age have good bodies, but bad health, I have excellent health but a buggered body that still works Posted by The alchemist, Thursday, 5 January 2006 1:35:02 PM
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Alchemist.
As a person with "incurable" cancer I am interested in your story. I hear many stories about people given a period of time to live based on statistics, we all know that statistics are irrelevant in individual cases. I will probably not die from leukaemia but from pnuemonia due to my seriously impaired immune system. No amount of drugs will stop this. What is the illness you have conquored? If you would rather not say I understand. I am just interested. Steve Posted by Steve Madden, Thursday, 5 January 2006 1:55:32 PM
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Steve, Lung cancer that spread to my bones. I had the lower right lobe removed in an experimental procedure, they figured I wouldn't survive long. I didn't smoke but couldn't throw of colds. Then my lungs collapsed. In Peter maccallum I lost my hair, nails, vomited constantly and my body was in constant agony, I walked out and went home to die. A friend brought a bloke to see me and he told me that he couldn't help, but he could show me how to help myself. I thought he was a crank but wife to be and friends pestered me to try.
He taught me how to live properly, to understand and work with my body. He showed me how to use my mind to change my metabolic rates and how to actually feel what is going on inside me. Three years later, I had a pain in my chest, doctor sent me to see the surgeon that had done the job. When I walked he went white and couldn't speak. From that point I realised that I may be handling my problem, so set of travelling to find the answers to lots of questions. Those travels brought me in touch with many that were suffering. Those that made the effort to take control, made it. Those that relied on medical practise, didn't. So now I am always available to help people with what I have learnt, even to the point of having them come and stay with me or going to them anywhere in the country to help if I can. Health should be free, not on economic terms as it is now. I give my knowledge freely, my reward is seeing people happy and in control of their lives, even if they haven't reversed their problem, which is rare, 99% stop it from killing them. I am not 100% by any means, but I am alive and planning a long future, always knowing that sitting right behind me is a death sentence, I just stay well in front of it. Posted by The alchemist, Thursday, 5 January 2006 3:32:03 PM
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I'm not well versed in MS or its treatment and for all I know Naltrexone may be the wonder drug Cris claims it to be.
I have a chronic metabolic disorder, which (similarly to Alchemist) I am controlling through diet and nutritional supplement. This particular disorder, if left unchecked, results in mental health problems and if I'd followed the advice of conventional medicine I'd be on anti-depressants for life. I might have functioned okay as a result but the underlying digestive and metabolic problems would still have been there - masked but not healed. Instead, I'm feeling the best I have for a long time and have no need for any medication.
If I had MS, I would certainly consider this drug. But I wouldn't dismiss the possibility that dietary and lifestyle changes might not be just as effective in controlling symptoms. I have a friend who was once quite debilitated by MS and who made some radical changes to her diet and lifestyle. Today she is both symptom-free and drug-free.