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German doctors apologise : Comments
By Lachlan Dunjey, published 4/3/2013One can almost read the headline 'medical advance enables Down syndrome prevention'.
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Many conditions such as Down’s syndrome are not a disease—they cannot be eradicated “ in a couple of generations”. Naturally occurring genetic variations are present at the very beginning of life in every cell of the fertilized ovum, and remain present at every stage of life, from the embryonic and foetal stages to the new born babe, infancy, childhood, adolescence and adulthood.
Every unborn child has a right to exist, a right to be born. Every child has the inherent and inalienable right to membership of the human family. That membership is inclusive of all the billions of natural variations of abilities and appearances and personalities and problems. Though we are not endowed with equal abilities, we each have an equal right to be born, a right to be given before as well as after birth equal protection of the law against lethal medical interventions.
Leaving human rights and any form of religious faith aside, I believe deeply that every human life is good, worth having a go at no matter what the calculus of happiness to suffering.
Your son , David, is uniquely who he is. He’s defied immense odds just to be alive and to stay alive.
He is a hero.
Not a trophy.
As you yourself are a hero—you have loved him and suffered for him and with him and day after day have acknowledged and affirmed his life as your son.
All these years, you and others who also have loved him, have affirmed his fragile presence here. His triumph is just to stay alive in an imperfect world set in an immense hostile universe. You have supported his will to live and have kept him from oblivion.
This is heroism in the true sense of the word. Our world would be poorer without him.